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February 9, 2015

Eliciting the Patient’s Experience of Illness through Narrative and Reflection

Prepared and presented by Paula Schultz BSN, RN, CNRN, UH Seidman Cancer Center, Office of Patient and Public Education

Objectives
Creating an environment where patients are allowed and encouraged to tell their illness story is a crucial yet often overlooked component of cultural competence in healthcare settings.

Introduction
A factor that often gets overlooked when it comes to cultural competence is the patient’s “voice” or “narrative and reflection” about their illness. Healthcare providers tend to be disease focused, while patients seek medical care because of their illness. This can cause disconnect to happen from a provider’s treatment of disease and a patient’s need for treatment of illness. Studies show that allowing and encouraging patients to tell their illness story can be transformative to the patient and provide important knowledge about the individual to the healthcare provider. Yet, narrative and reflection is a topic many are unfamiliar or uncomfortable with. 

Cultural Competency in ACTION: Steps to start your journey!
List 3 self-reflection questions or items to consider related to the topic.

  • What concerns do I have about allowing and encouraging patients to tell their illness story?
  • Are my concerns based on experiences I’ve had with patient narrative and reflection–or—am I concerned about potential problems I anticipate will occur?
  • How willing am to make changes that encourage and allow patients to tell their illness story? 

List 3 strategies or action steps that will help the reader enhance their skills in the topic area.

  • Consider the patient’s experience of illness as a crucial part of patient centered culturally competent care.
  • Identify the distinction between disease and illness in order to bring the patient’s view into focus.
  • Apply communication methods to enhance cultural competence by allowing and encouraging patient narrative and reflection.

Presentation with Voice-over
Eliciting the Patient’s Experience of Illness through Narrative and Reflection by Paula Schultz BSN, RN, CNRN; UH Seidman Cancer Center, Office of Patient and Public Education

This 10 minute PowerPoint presentation (http://youtu.be/bJDob4vxaDk) considers the rationale behind and methods for eliciting the patient’s experience of illness as a crucial part of patient centered, culturally competent care.

Cultural Inclusion and Awareness Series

The Case CCC Minority Accrual Committee (MAC) would like to introduce a new name, Cultural Inclusion and Awareness Series for the Cultural Competency Series.  The new name will allow the Committee to broaden the Series scope and post information which will have more research focus. 

The MAC would like to initiate the retitled Series with the posting from the FDA Voice,  2/13/17, entitled “FDA Drug Trials Snapshots and Diversity When Testing New Drugs” by John J. Whyte, M.D., M.P.H., Director of Professional Affairs and Stakeholder Engagement at FDA’s Center for Drug Evaluation and Research.

June 15, 2017: Health Disparities Data Widget

May 8, 2017: FDA Drug Trials Snapshots and Diversity When Testing New Drugs

December 1, 2016: SRHEC Debuts Cultural Competency Resource Guide and White Paper

April 5, 2016: National Minority Health Month

December 15, 2015: Case Comprehensive Cancer Center Cultural Competency Series

November 18, 2015: Cultural Competency and the Informed Consent Process

October 14, 2015: October is Health Literacy Month

October 2, 2015: Unconscious Bias: Cancer Clinical Trial Disparities in Racial and Ethnic Minority Populations

August 24, 2015: Revised: Case CCC Clinical Research Brochure for African Americans

July 17, 2015: Reshaping Research: A Guide to Integrating Cultural Considerations into Research

June 19, 2015: What We Really Talk About When We Talk About Food

May 18, 2015: Think Cultural Health

March 30, 2015: Implicit Bias: An Introduction

February 9, 2015: Eliciting the Patient's Experience of Illness through Narrative and Reflection

January 26, 2015: Cultural Competency and the Research Process

January 12, 2015: Understanding Cultural Competency: Definitions and Concepts

December 8, 2014: Operationalizing Culturally Competent Research